Some random thoughts along the way. Jim coped well and indeed seems to be rejuvenated, at least for now. The kids were at their very best, banding together to assure I was being attended to. Since I have a catering job on Saturday, Lynn is heading up the volunteers, and getting it done. Laura has taken the last three days off to be here for me, especially running errands. Matt came home and took charge of getting the kitchen rearranged and back in order.
The care at BIDMC couldn't have been better. A battery of tests kept my dance card pretty full, and each person who arrived (promptly, even) from transport was friendly and efficient. The array of faces one passes in a hospital provides as much diversity as a visit to Sesame Street. People from different parts of the world come together to seek and give care. At times I really wished I had a camera to capture this uniquely positive atmosphere. The barriers that keep us from connecting with one another are instantly removed once you are a patient. It is hard not to seek to befriend someone who has temporary control over your life... a genuinely humbling experience. Even the bed was rigged to set off an alarm if I had the temerity to take myself to the loo without a guardian. My favorite memory was of a mature gent who visited with six students. All crowded around my bed, while he gleefully jabbed me with a tack all over my body, like Julia Child with a duck, all the while saying, "can you feel the little prick, can you feel the little prick?" And me trying to compose my face. "Ya, buddy..." Still not sure he wasn't aware of and delighted with the double-entendre. He had a mid-European accent, while my favorite nurse, Sree. was from southern India. Discussed Iranian cooking with the Echo-cardio tech whose mom who was from Iran, and a transport assistant asked me if Wendy, his baby daughter's name, struck me as American because he and his wife felt if the child was born here, she should have an American name.
Prognosis? My symptoms are still with me. Half of my tongue is numb even to hot and cold. My fingers and face still are numb and tingly. My handwriting is different. But overall, this seems to be an isolated situation. It wasn't the kind of stroke that is induced by a blood clot. This was a small corpuscle in my thalamus that developed a hole, as I understand it. So the likelihood of recurrence is slim.
I have to pay more attention to my diabetes, which had fallen to the bottom of the priority list for a while now. Consequently, until it is under control, I have been ordered to take insulin, until it is well controlled, and then we can go back to the pills, hopefully, because testing and taking insulin is a pain in the neck.
5 comments:
Glad you will be ok. You need to take better care of YOU!
Your writing may be different but your "writing" stills has me giggling like a fool with tears pouring down my cheeks. I have a meeting in 2 minutes and will try valiently not to use the phrase "can you feel the little pick" lol.
Oh Linda. . . "The caregiver needs to care MORE for her well-being!"
What can I do to help????????/Please
Fondly,
Carol
Did you get some rest? Seriously, you need to move you up the priority list a good bit and let some others help out more. B.
I won't presume to tell you what to do. Or maybe your main need is to do LESS. Whatever. Just follow the advice that Linda would give you, if she could.
Jim seems to be on a good path now. Sounds as if he's in good hands. All your previous months of TLC (and a rest from LNT)is paying off.
Love and best wishes to you both.
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